HIVictorious, Inc. HIV AIDS prevention education awareness advocacy

Live to Tell the Tale!
 

"If there were such a thing as a force of destiny in our lives, I would say that Bob was born for this role; no one has carried this difficult mantle with more dignity, conviction, purpose, and compassion."

 ~Madeleine Schwab
Cross Roads High School
Santa Monica, California

 

Welcome to onetoughpirate.com (OTP)

I'd like to extend my sincere and heartfelt thanks for your compassion, love, support, and
for taking the time to visit! I sincerely hope that you enjoy this site.   

OTP has been in existence for eight years now. T
his site pays homage to hope, survival and to the over 25 million of our courageous brothers and sisters, that were taken from us far too early in life. My wish is that it also lends hope to those who pass upon these pages. No matter what obstacles we may face in life, I truly believe that where there is a will, there is a way. May this site be a reminder to us all, myself included, that we are indeed one. May we remember that life is precious and a wondrous passage worthy of giving it our all. I am truly blessed to be alive. I have survived living with HIV/AIDS for over two decades and have dedicated my life to educating and empowering others about this dreadful scourge we call AIDS. I fight equally to be a voice of hope, knowing that we all have obstacles to overcome. I've come to realize that good, bad or ugly, life is truly a blessing. Throughout these many years, I have had the privilege and honor to speak to countless thousands of students and adults alike about real life and living life with HIV/AIDS, neither of which are easy. I hope that through my speaking, or in my day to day interactions, that I've helped empower others to live life to the fullest as you have helped me! I give endless thanks and praise to you, my family, friends and those individuals who have blessed my voyage to this point in life. I say without a doubt, "I did not get here alone!" Your involvement in my life and/or words of love, encouragement and compassion are forever embedded in my heart, soul, mission and on the many pages throughout this site! Once again, welcome!

"Compassion is our cure."

Namaste,

Bob Bowers
A.k.a. Da Pirate


 

skull with flames flaming skull pirate logo OTP www.onetoughpirate.com One Tough Pirate

 
Pirates Magazine One Tough Pirate Bob Bowers Da Pirate available in bookstores  

Bob Bowers HIV AIDS survivor educator advocate activist Our Lives Magazine Madison Wisconsin

Available now at bookstores!
Da Pirate is featured in the Summer 2008 issue of America's first full color pirate magazine and the only pirate magazine available in Barnes & Noble, Borders, Hastings, Transworld, Dalton Books, & Books A Million!

Click to learn more about Da Pirate in the July/August issue of Our Live Magazine

CLICK HERE FOR MORE NEWS ON Bob Bowers, a.k.a. Da Pirate

 

 
OTP One Tough Pirate Black Hooded Sweatshirts

 

AVAST! We have a few remaining black OTP hoodies for sale!
Sizes medium  and large are still available so get your order in!
All proceeds go to the Corvallis Elks Charity Trust to further our HIV/AIDS education in Oregon.
If you are interested in owning one of these rarities, please e-mail us by clicking here

 

Click here to see our complete online merchandise

All proceeds directly benefit HIVictorious' HIV/AIDS prevention and education

 
 

Bob Bowers Founder and President HIVictorious, Inc. HIV AIDS awareness poster campaign Madison, Wisconsin

Bob Bowers, a.k.a. Da Pirate Founder and President of HIVictorious, Inc. standing in front of our first billboard displaying our winning HIV/AIDS awareness poster by Collin Burke. Watch for our billboards and bus ads around Madison, Wisconsin and Dane County. Please visit www.whatifitwereyou.org to learn more about our AIDS awareness poster contest.

 

NEW! View the most recent news about "What if it Were You?" Aired Thursday June 19, 2008
Note: The photos that I added at the end of the clip are not accompanied with audio.
CONGRATULATIONS and THANKS to Collin Burke from Memorial High School!!

aids survivor activist and educator bob bowers

"No one is promised tomorrow" OTP One Tough Pirate

 
 

CLICK HERE FOR MORE NEWS ON DA PIRATE

 
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You hold a great deal of fire! It's nice to see that we [humanity] are able to use it in a positive way. That in itself is inspiring and fortunately... inspiration is a great infection in itself that helps to spread knowledge rapidly.
thank you for all that you do, being strong!!

What's new on Bob Bowers' onetoughpirate.com

 
 
chest tattoo black wind bars spirit kanji chest piece black work flames full sleeve

Tis ALL about Da Pirattitude! The tattoo journey continues!!!
Click for more exclusive photos of Da Pirates chest piece being completed

 
Dear Bob,

Some people think that a hero is someone like a firefighter, soldier or a sports star. Someone who is brave, honest and invincible. After listening to you speak the other day, I would say the true hero is you. You are brave because you can say what you feel and express your emotions in front of 100's of people. Living with AIDS for 23 years makes you invincible and for that, I give you my utmost respect and thanks. I never thought that someone could change my outlook of life in just one hour. Out of all the lectures and speeches I've listened to in my life, yours was by far the best. You give people a glimpse into the real world of a person living with AIDS and you definitely got through to us. You break the stereotypical image of a person with AIDS. You didn't want to tell us what to do, which made us instantly like you. Someone who has the ability to make a group of people laugh, cry, and think, has an amazing talent. I wish I knew the words to say how much I appreciate you coming to to speak. I wish you the best of luck on the rest of your journey through life. If I could achieve just a fraction of what you have done in my life, I could die happy. But for now, we both know who theFight on! Bob Bowers OTP One Tough Pirate AIDS activist educator and advocate hero is.

Love,
Bailey S.

 
 

LEARN MORE ABOUT Da Pirate

92.1 The Mic FM Madison Wisconsin Progressive Talk Radio

Da Pirate gives a frank and candid interview for 92.1 The Mic, Madison's Progressive Talk Radio
The interview is an hour long and broken into six segments on YouTube
Thank you to Lee Rayburn

 
Part One   Part Two
 
     
Part Three   Part Four   Part Five   Final Part Six
 

Click here to read and learn more about Bob Bowers, a.k.a. "Da Pirate"

 

flaming skull with flames onetoughpirate.com OTP One Tough Pirate Bob Bowers Madison Wisconsin

 


Comprehensive sex education saves lives!

Bob Bowers Da Pirate and students from La Follette High School in Madison Wisconsin HIV AIDS education prevention awareness

Da Pirate recently speaking with some AWESOME students from Memorial and La Follette High Schools in Madison, Wisconsin
Click here to see more presentation photos on www.hivictorious.org

Bob Bowers Da Pirate and students from Memorial High School in Madison Wisconsin HIV AIDS education prevention awareness
 
 

You Tube - Bob Bowers One Tough Pirate HIV/AIDS survivor
YouTube videos of Da Pirate in Da News

 
>  
 
   
YouTube featuring photos
from the dance
YouTube of Da Pirate, Founder and President of HIVictorious, speaking at Camp Heartland's Dance Your Heart Out in the Mall of America
   
YouTube featuring Da Pirate promoting
"What if it Were You?" on NBC 15's
Morning Show with Sarah Carlson

YouTube of Da Pirate speaking at AIDS Walk Wisconsin 2007
Milwaukee, Wisconsin

 

Da Pirate, my friend,

I can think of few who should be honored in such a way.  You inspire SO many.  Whether it's Camp Heartland, the ACT Rides, a rally in Texas, or an informational session in LA, you are amazing.  More than that, you are a beacon of hope that 20+ years is possible.  Keep up the good work.

Yours in fight,
David H

One Tough Pirate on YouTube-HIV/AIDS promotional, awareness and educational videos

 

 
Dear Bob,

You not only supplied us with valuable information, you supplied us with inspiration and I am so very happy to know that there are positive people such as yourself that are spreading such important messages in this world. Not since reading The Diary of Anne Frank as a young girl has one person's life story touched such a heartstrings in me and inspired me to enjoy life to it's fullest. I'll be sure and come back and visit the web page often so I can stay updated on the life of Da Pirate. Take care and bless you!

Very Sincerely,
Jennifer

CLICK HERE FOR MORE NEWS AND VIDEOS ABOUT DA PIRATE

 
 

Earvin “Magic” Johnson the famous basketball player for the Los Angeles Lakers announced 17 years ago that he had AIDS and would retire from his career. At the age of 49, Johnson is still alive and doing well. With almost two decades of living with the disease some people are surprised to hear that he is still alive. In an interview with CNN he told reporters “Everyone thought I was going to die like a year later.”

Today his appearance could lead anyone to believe that the disease was not as menacing as it may sound, but Johnson is not the only person who lies to rest the misconceptions of people who have AIDS. Bob Bowers proves you don’t have to be famous to survive.

Bowers has survived HIV and AIDS for 25 years and he’s still living strong. In 1983 he contracted the virus from the sharing of needles; one time was all it took. He’s a passionate activist and HIV/AIDS educator and is one of the first 14,000 cases of AIDS diagnosed in the U.S. He strives to spread the message of prevention through education. In educating he acknowledges and truthfully answers all questions regarding his experiences with the disease, even aspects of his personal life. He is very real and straightforward, which is why his audiences are able to relate and thoroughly absorb his messages. He stresses the necessity of universal precautions, meaning safety in all things. Bowers’ passion and determination involving HIV/AIDS isn’t limited to educating. He strives to awaken a sleeping public that has seemingly forgotten that there is still no cure for the millions of people living with HIV/AIDS.

Recent surveys and studies across the nation conducted by such media as the New York Times and UNICEF have shown that the majority of Americans are uneducated regarding HIV and AIDS. Public understanding of HIV and AIDS is vital to finding a cure. The wrath of the disease does not encompass only gay men, prostitutes and drug-users nor does it result in an immediate death sentence.

In 1986 Catherine Cory experienced complications during the birth of her first and only child and needed a blood transfusion; two years later as she attempted to donate blood she was told she was HIV positive. The blood she received during her transfusion two years earlier was tainted and to make matters worse, she had breast-fed her child and he soon tested HIV positive as well. Catherine’s husband, Richard Cory, has admitted how uneducated he was about the disease. “I was almost afraid to touch Alex and Cathie for awhile.'' He said.

Catherine lived for many years symptom-free but became ill in 1999 from a liver problem brought about as a side effect from an anti-AIDS medication she was taking. Catherine died in 2000; her cause of death was complication from a Hepatitis-C infection. Living over a decade of life with HIV and the health complications Catherine faced, her husband remembers that she kept her sense of humor until the very end. He then recalls coming home from the hospital after her death and having to tell their 14-year-old son, Alex. It was not Alex who needed comforting, but his father, who says it was Alex that supported him through such a difficult time.

Alex Cory, the son of Catherine and Richard Cory is now 22 years old. His childhood was similar to many children, filled with love from his parents. He attended grade school played the saxophone, joined the boy scouts, and had braces. He experienced things most kids experience during their childhood. Alex went on to graduate high school and college and now lives and works as any other human being. He also expresses that his college experience was one of his favorites. Throughout his growing years Alex has kept a closely knit group of friends all accepting and understanding to the fact that he has AIDS. He isn’t an active educator or public speaker like Bowers, although his father, who does not carry the disease, is active with the Red Cross and with Global Ministries through The United Methodist Church. Cory considers himself a normal guy. “I go to work Monday through Friday and play video games in my free time,” he says. Cory deals with his unique situation by being optimistic.

“I know that seems kinda hard if you’re depressed about having AIDS/HIV, but enjoying your life today is much better than being depressed about it. My mom always said, ‘When you wake up in the morning you make a decision: Will today be a good day or a bad day?’ Just starting the day with that in mind has helped me to be optimistic. So go out there and do  something with your life,” says Alex.

[In fact] Alex Cory has done just that. He is currently a successful computer programmer for Dominion Enterprises in Norfolk Virginia, one of the nation’s largest providers of highly targeted classified advertising. Alex has never known life without the virus. One of his most memorable moments of facing people uneducated about HIV/AIDS was during his early childhood. “I blurted out at the bus stop at a very young age that I had AIDS,” said Alex. “I guess I was naive and thought it was a good thing.” He also remembers there were those that would run away in fear (literally). There were times when children found out that Alex had AIDS and they would run when they saw him coming near.

Bowers believes that children aren’t told what they should know about HIV and AIDS because there are many other issues people face when explaining the disease. Issues like gay men, prostitutes and drug-users. Bowers has spoken to people both young and old who do not understand HIV/AIDS. He believes that the reason many children remain uneducated is because the people who should be telling them about the diseases are afraid or uneducated themselves.

“We can’t tell people drug addiction is a bad thing, just don’t do it with no explanation,” says Bowers. HIV/AIDS has to be explained and children want questions answered. Questions like how soon will a person who has AIDS/HIV die? People often conceive that death soon follows a HIV diagnosis, with over 45 years of living with HIV/AIDS between the two Bowers and Alex Cory have put that myth to rest.

This is not to say that a person can contract HIV and continue living a significant life span without assistance. There has been no such reported case. HIV/AIDS patients receive life-saving medications and treatments to withstand the HIV and AIDS.

Alex Cory currently takes 12 pills a day. He recalls a time he once was taking 40 pills twice a day.
The HIV and AIDS medications that have helped preserve the lives of people like Bowers and Cory living with the disease are not immediately available to all. This is a major concern of Bowers, last year The New York Times reported that 350 people in South Carolina were on a waiting list for HIV/AIDS life-saving drugs. This year that list has risen to 500. North Carolina reportedly once had a waiting list of more than 800. There is no waiting list in California, but because we have no waiting list there is what some might call a penalty for a good standing. According to President Bush’s budget new federal resources for HIV/AIDS will not be available to states without a waiting list, states like California.

An estimated cost for HIV/AIDS therapy and treatment can range from $10,000 to $14,000 plus per year per person for outpatient medication, meaning the amount doesn’t include medicine received during hospital stays. Government assisted insurance such as Medicaid is available for people diagnosed with HIV/AIDS. Bowers is a recipient of Medicaid, and says that he would not be able to afford the medication or treatment without their help. Currently Bowers’ daily medication consists of 14 pills his peak was 65 pills daily in the late ‘90s. The total cost for his current medication is roughly $3,000 per month he doesn’t pay that amount only a co-payment or deductible which is a fraction of the total cost.

Treatment has shown great strides for HIV/AIDS patients, but the concerns throughout the HIV/AIDS community are whether these medications are available to the people who need them.  People with HIV/AIDS who have tried existing medications which fail to work for them will be offered a new drug called Fuzeon awaiting FDA approval and has a price tag of $20,000 per year. Fuezon is only one medication, the combination of all medication for an average AIDS/HIV patient plus adding Fuezon to a patients list would more than double that total. Insurance companies usually pay for most HIV/AIDS treatments but uninsured people face a difficult road. Data from the United Nations program on AIDS reported, globally, there were 33.2 million people living with the disease in 2007 and a total of 2.1 million AIDS-related deaths in that same year.

Arguably the biggest concern among the HIV/AIDS community is the quest for a cure. Although Bowers appreciates the great strides the medical community has made with HIV/AIDS medication, he questions why there hasn’t been more progress towards a cure. Since the first case of AIDS in the U.S. was reported in 1981 the epidemic has grown rapidly. According to the Department of Health and Human Services Centers for Disease Control and Prevention, a revised 2007 count of the total number of HIV/AIDS cases in the U.S. totals approximately one million.

Bowers believes that a cure lays in the social aspects of human beings meaning that we need to understand, tolerate and learn more about one another. We should strive to be accepting to the differences of others. Knowledge is the key, people can learn about something they are afraid of only to find out it was not frightening to begin. He believes that if we as a people make finding a cure a priority it can happen.

“I’m just someone sharing the human experience; AIDS encompasses so much more then just a virus,” said Bowers.

~Story by Bianca DeCastro from San Jose State University

 
 

Da Pirate featured on www.storybridge.tv in conjunction with the ACT V AIDS Ride in Madison, Wisconsin. Be sure and visit my friends Katy and Jay at StoryBridge.tv and register to leave comments, thank you! They have launched their all new look and feel which includes interactive tools such as, the ability to embed this and other stories on your website or blog, HIV/AIDS information, message boards and resources.
Please tune in and share this video with your friends!

CLICK HERE FOR MORE NEWS ON DA PIRATE

 
 

View the film trailer to the
feature length documentary

"The Fire Within"

   
 

 

 

The Fire Within Documentary about HIV/AIDS survivor Bob Bowers - Leanne Whitney-August Moon Entertainment

Click to purchase the DVD from August Moon Entertainment

 
 
My husband and I watched 'The Fire Within' last night. It was so powerful and heartfelt. You are an amazing spirit Bob. You are a brave 'WARRIOR' and you put up a good fight against HIV/AIDS. I hope you are doing well today! It's a day at a time. I thank you for the work you are doing and the hope you instill.

Peace, Good Health and Many, Many Blessings friend,
~Nancy~
 
 

Documentary on AIDS-The Fire Within HIV AIDS feature length documentary by Leanne Whitney Rent it on NetFlix

 


Bob Bowers, One Tough Pirate, also known as "Da Pirate," has been living with and surviving HIV/AIDS for over 24 years. To broaden his message of survival, education, hope and compassion, he founded HIVictorious, Inc. in 2005. Mr. Bowers is a leading and well respected HIV/AIDS educator, advocate and activist living in Madison, Wisconsin. Bob has been very outspoken about his diagnosis and his life struggles and personal choices prior to the time of his infection. He speaks on how HIV has helped him to make better choices and to appreciate the beauty of life. He is living proof that there is nothing impossible in this world if you apply yourself, physically, spiritually and emotionally. Mr. Bowers is a champion for hope and survival despite some of the difficult circumstances that we ALL face in life.

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Site last updated: 07/22/2008

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