"A pessimist
sees the difficulty in every opportunity;
an optimist sees the opportunity in
every difficulty."
-
Sir Winston Churchill
Kalee crabbing
on the Oregon Coast-2007
Jake Glaser, Kalee
and Da Pirate at Camp Heartland
August, 2006 We have a combined 64 years of living with
HIV/AIDS Y'all know what it takes sometimes...
Working as a camp counselor and as an occasional
ambassador for Camp Heartland has opened my
heart and soul in more ways than I could have
ever imagined. I have a new extended family with the staff,
campers and volunteers. I would like to introduce
to you one very special member of that family,
Kalee Garland. Last October, I attended Camp's
Youth Retreat where teens from camp have the
opportunity to learn life skills from independent
living, dating with HIV, to college preparation
etc. The 'Heroes and Sheroes' I have met through
my camp involvements are inspiring and incredible
to say the very least. The path that many of these youth
have had to travail is mind boggling and full
of courage, tenacity and heart. My friend Kalee
Garland is one of those very 'Sheroes' that
has blessed my life. As you will read, young
Kalee has lived her entire life infected with
the HIV virus. I am humbled and dumfounded by
her courage, passion and zest for life. I actually
'met' Kalee while on a blindfolded lesson in
teamwork and trust. I'm not quite sure how it
came up exactly but as my hands were on her
shoulders in front of me walking along laughing
and blindfolded, in her sweet voice, she disclosed
her status to me, as well as the fact that she
was born with HIV. It is indeed beautiful the
ways in which the universe operates in our lives.
I was truly weak in my knees and got goose bumps
as she told me more. I was absolutely flabbergasted
and in awe of this beautiful young lady. It
seemed we formed an instant connection and mutual
respect. As we sat on the bench, I listened
intently as she told me her ‘life story’ with
no pity, just very matter of fact. I also spoke
to/with the Adventure Program teens and was
able to hear Kalee share more of her life and
dreams with the group as well. She is eloquent,
loving and determined to survive and spread
the word to others. Fear and shame are nowhere
to be found in Kalee's vocabulary. In fact,
after a recent phone conversation with Kalee,
I hear she too will be sky diving soon, again,
NO FEAR! She also continues to do her part educating
and advocating on behalf of HIV/AIDS while sharing
her inspiring story. I couldn't be more proud
to call Kalee my friend and wish her another
100 years of continued health and happiness.
Thank you Kalee for blessing my life and that
of many others. I look forward to working more
with Kalee, both at Camp and through various
other outreach and education. We are all blessed
to know Kalee and now you are too! Fight on
girl!
My name
is Kalee Garland. I was
born positive on May 13
1986; my status was not
discovered until I was seven
years old. My elementary
school called CPS (Child
Protective Services) on
my mom. The school thought
my mom was beating me because
of the multiply bruises
on my legs and arms. My
mom was not beating me.
I was forced to go to the
doctors. The doctors initially
thought that I
had leukemia. After a marrow
test, the doctors discovered
that I had ITP (Idiopathic
Thrombocytopenic Purpura).
After comprehensive tests,
my doctors discovered I
was HIV positive. My whole
family was tested. My two
older brothers both tested
negative (thank god). My
father was also negative,
but my mom was positive.
She contracted the virus
when she was between the
age of 17 and 19 from her
first real boyfriend, Bill.
Bill had a blood transfusion
and used IV drugs. My mom
tracked down Bill in 1994.
He had passed a couple years
earlier from AIDS related
causes. My T-cells were
seven. I had been diagnosed
with AIDS. The doctors told
my mom that I would most
likely die in about six
months. My mother put her
health aside and focused
on mine. She immediately
enrolled me into a study
at NIH (National Institute
of Health). I was put on
a
combination on DDI, AZT,
and 3TC. The drugs that
I was prescribed to take
were toxic. When my study
was over, I made the decision
to stop taking meds. All
I wanted was to be “normal.”
“Normal” kids did not have
to take disgusting tasting
medicines, or worry about
getting sick. I did not
disclose my status to anyone,
not even my school. I lived
in fear all throughout school
of people prejudices. In
the sixth grade I finally
told my best friend Janet
my secret. Her reaction
was positive and it felt
so good to be able to tell
someone. My friend’s acceptance
helped dispel my fear of
people being scared to be
close to me. Until two years
ago, I never had any health
problems due to my health
status. During that span
of time, I got cryptococcal
meningitis four times. The
last time was by far the
worst. I lived in UCSD medical
center for over a month
and a half. My head was
shaven to put a shunt into
my skull to drain the fluid
that was rapidly building
up. My weight plummeted
drastically to less than
90 pounds (I am 5’6) from
vomiting and being on a
diet of opiates and glucose.
I broke out early and turned
my family friends’ house
into my rehabilitation center.
My family and friends feared
for my life, but I knew
it was not my time. I decided
as my New Year resolution
to focus on my health. I
had not taken medication
for over ten years. My CD4
count has stayed in the
single and double-digit
numbers and my viral load
as pretty much been in 20,000s
all my life. I feel I am
in a place in my life were
I do not have to hide or
be scared. I do not have
to go to school five days
a week for eight hours,
and see the same people.
All my friends know my status
and are supportive. My viral
load is now almost undetectable
and my CD4 count is still
lingering around 13, but
I am not too worried about
it, it will come up when
it is ready.
“At such moments, you realize that you and the
other are, in fact, one. It's a big realization.
Survival is the second law of life. The first
is that we are all one.”
~Joseph Campbell
Friends of Da Pirate unite! With Kalee and EG at
Camp Heartland in Malibu
Above photos taken during our 2007 Oregon speaking
tour. See news below.
Student, born
with HIV, gives talk
By THERESA HOGUE
Gazette-Times reporter
When Kalee Garland was 7 years old, her teacher
called Child Protective Services because she
saw Garland covered in bruises and feared the
worst.
But the worst was not exactly what her teacher
had expected. Garland was not being hurt by
her mother. She was battling AIDS.
The diagnosis was unexpected to everyone, especially
Garland’s mother, who until that moment hadn’t
realized that she had been infected with HIV
by a boyfriend long before Garland was born.
Garland was born with the virus, and by age
7 she had full-blown AIDS — and a very bleak
prognosis. Doctors didn’t expect her to live
longer than six months.
But now, at age 21, Garland is a university
student in San Diego with a fiancé and exciting
plans for her future. For the past week, she’s
been traveling around Oregon with her friend,
Bob Bowers of HIVictorious, talking about her
life with AIDS to school kids, community groups
and whoever else will listen.
Bowers is the nephew of Corvallis resident David
Williams. The Corvallis Elks, of which Williams
is a member, has hosted Bowers and Garland’s
appearances. They will speak at area high schools,
Community Outreach Inc. and other locations,
including a keynote address at Linn Benton Community
College. It is scheduled for Thursday as part
of International World AIDS Day.
Garland first met Bowers when she was attending
Camp Heartland, a camp for children and teens
affected by HIV.
“I saw Bob and totally connected with him ...
He had tattoos, and he reminded me of Henry
Rollins,” she said, referring to the famed —
and heavily inked — author and former lead singer
of the punk group Black Flag.
When Bowers started talking about his own experiences
as an HIV-positive adult, he also shared his
mission through HIVictorious, which is to educate
and demystify the world of AIDS/HIV. He asked
Garland if she might be interested in traveling
to Oregon in the fall to help him share that
message.
“I jumped at the chance,” Garland said. She’s
already done multiple presentations on AIDS
through the University of California at San
Diego, and feels it’s important to help people
understand the truth about HIV.
“People with HIV and AIDS are just human,” she
said. “We’re not running around infecting people.
You have to engage in a behavior that’s high
risk to contract it.”
Garland survived her early years with AIDS by
taking a combination of highly toxic AIDS medications,
but by the age of 10, she began refusing treatment
because the side effects were too great. For
a time, she participated in an experimental
treatment where she was infused with a donor’s
white blood cells, but the experiment was discontinued,
so throughout her teen years, Garland went untreated.
That turned out to be a mistake. Garland contracted
meningitis four times between the ages of 16
and 18, and the final time, it was so severe
that doctors had to implant a shunt through
her head that drained into her stomach. She
decided it was time to get back on her medications.
Today, her viral load is now undetectable, and
her T-cell count is at 80, where it used to
be in the teens. T-cells are a kind of white
blood cell that help fight off illness. A healthy
human usually has a count of 600 to 1,200.
She doesn’t know what the future holds, but
says any prognosis she receives will be taken
with a dash of skepticism. After all, doctors
didn’t expect her to survive past age 8 anyway.
And while she wants to make sure other young
people know that people with AIDS and HIV shouldn’t
be feared, she wants to impress upon them that
the disease itself is nothing to take casually.
“You’re not invincible,” she said.
*************
World Aids Day focuses
on what you can do to combat the
disease
Alex
Paul/Democrat-Herald
Kalee Garland, who
has was born with
HIV/AIDS, and Bob
Bowers, who has
lived with the disease
for 23 years, spoke
Thursday at Linn-Benton
Community College
during World Aids
Day.
At
first glance, dressed in black,
with tattoos running up and down
both arms, and a skull-like silver
belt buckle, Bob Bowers is an imposing
figure.
That is until he starts to to talk
about living with HIV/AIDS for 23
years. Tears start flowing and the
tough guy persona melts away.
The tears, he says,
aren’t about his life. They are
for the millions of people around
the world who have died from the
disease or its complications. Many
of them were his friends.
Thursday, Bowers and Kalee Garland,
21, who was born with HIV which
turned into “full blown AIDS” when
she was just 7 years old, spoke
at Linn-Benton Community College
during World AIDS day. Their visit
was sponsored by the college’s Student
Life and Leadership office.
“We have lost 25 million brothers
and sisters so far,” Bowers said.
“Yet, this is a preventable disease.”
An Oregon native, Bowers said AIDS
is an extension of social issues
including extreme poverty, racism,
and physical and mental abuse. Bowers
lost his mother when he was 10 and
never knew a real father figure.
He went looking for love and often
in the wrong places. At 19, he was
living a fast life of drugs and
unprotected sex in Los Angeles.
At 21, he was diagnosed with what
was then called Gay Related Immune
Deficiency. He said AIDS no longer
garners front page headlines because
people believe there are “drug cocktails”
that have defeated the disease.
“Those cocktails are actually chemotherapeutic
medications,” Bowers said. “They
are powerful, they make you sick.
It isn’t pleasant and they cost
thousands of dollars per month.”
They also don’t work for everyone
with AIDS.
Bowers said HIV/AIDs does not discriminate
by social class. It is not a homosexual
disease.
“It’s not who you are, it’s what
you do,” Bowers said. “If you want
to shoot dope, don’t share needles.
If you want to have sex, use a condom.”
Garland is a San Diego, Calif. native
who learned about her disease after
a teacher thought she had been abused
at home. Bruises were outward signs
of her disease.
“I love my life. I was supposed
to die at age 7,” Garland said.
“I am not a survivor; I am a fighter.”
Garland has endured the inability
to fight off infections caused by
the disease, including battling
meningitis four times and having
68 spinal taps during her many stays
in hospitals. She has also suffered
from the ignorance of others, including
teachers, when it comes to HIV/AIDS.
Garland is engaged to be married
and says her fiance does not have
HIV/AIDS. Bowers was married for
11 years and his wife did not have
HIV/AIDS, nor does she now. He has
been in a 3-year relationship with
a woman who does not have HIV/AIDS.
Protection, Bowers and Garland agree,
is mandatory, not just because of
AIDS, but also to protect yourself
from more than two dozen sexually
transmitted diseases. The two encouraged
the audience to be involved by becoming
educated, getting tested, volunteering
with programs such as the Valley
Aids Information Network and supporting
legislation to find a cure for the
disease.
Locally, visit the Valley Aids Information
Network at
www.valleyaidsinfo.org or call
the Linn County Health Department
at 967-3888.
By Alex
Paul, Albany Democrat-Herald.
*************
Once a Pirate,
always a Pirate!
Re-united at last!-Camp Heartland, 2006
Kalee and
me were canoe skill leaders
Kalee and
Da Pirate-2006
Arrrrrrrrrrrrr baby!
Da Pirate filming Kalee
for the MTV Special
"Think HIV--This is Me"
I couldn't be prouder to Kalee was featured in length
on the recent MTV special
"Think HIV-This is Me." The show was amazing and
if you missed it, you can
click here to view it online.
Just click "Channels" then "News" and then scroll down
to the title of the show. I'd like to extend a special
thanks to David Gale, Executive-Vice President of MTV
Films for being so gracious with Kalee, me and others
at camp!
Thank you is not nearly enough.
Kalee's latest tattoo
addition!
Kalee
and Da Pirate at Camp Heartland's Youth Retreat