youth HIV/AIDS education, prevention, awareness-Long-term AIDS survivors, activists-Madison, Wisconsin-United States
Speakers doing HIV/AIDS prevention, education in jails, prisons, correctional facilities, schools, colleges, universities-Bob Bowers-Madison, Wisconsin-United States

Madison, Wisconsin AIDS activist Bob Bowers-AIDS/HIV awareness, education, prevention, activism, advocacy by Bob Bowers One Tough Pirate

Speakers doing HIV/AIDS education-prevention in jails, prisons, correctional facilities-Speakers-Madison, Wisconsin-United States

 
 
Photo of AIDS survivor Kalee Garland on KLOO FM radio in Albany Oregon
 
 
Thank you Kalee. Fight on!
 
 
 
 
AIDS activists-United States and Madison, Wisconsin
 
 

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"A pessimist sees the difficulty in every opportunity; an optimist sees the opportunity in every difficulty."

- Sir Winston Churchill

 

Photo of Kalee Garland in Oregon

Kalee crabbing on the Oregon Coast-2007

 

 
   

Jake Glaser, Kalee Garland and Bob Bowers aka Da Pirate at Camp Heartland
August, 2006
We have a combined 64 years of living with HIV/AIDS
Y'all know what it takes sometimes...

 

Pirates tattoos photos-full sleeves tattoos photos page-Carpe Diem!

 

Working as a camp counselor and as an occasional ambassador for Camp Heartland has opened my heart and soul in more ways than I could have ever imagined. I have a new extended family with the staff, campers and volunteers. I would like to introduce to you one very special member of that family, Kalee Garland. Last October, I attended Camp's Youth Retreat where teens from camp have the opportunity to learn life skills from independent living, dating with HIV, to college preparation etc. The 'Heroes and Sheroes' I have met through my camp involvements are inspiring and incredible Camp Heartland Youth Retreat-Blindfold Walkto say the very least. The path that many of these youth have had to travail is mind boggling and full of courage, tenacity and heart. My friend Kalee Garland is one of those very 'Sheroes' that has blessed my life. As you will read, young Kalee has lived her entire life infected with the HIV virus. I am humbled and dumfounded by her courage, passion and zest for life. I actually 'met' Kalee while on a blindfolded lesson in teamwork and trust. I'm not quite sure how it came up exactly but as my hands were on her shoulders in front of me walking along laughing and blindfolded, in her sweet voice, she disclosed her status to me, as well as the fact that she was born with HIV. It is indeed beautiful the ways in which the universe operates in our lives. I was truly weak in my knees and got goose bumps as she told me more. I was absolutely flabbergasted and in awe of this beautiful young lady. It seemed we formed an instant connection and mutual respect. As we sat on the bench, I listened intently as she told me her ‘life story’ with no pity, just very matter of fact. I also spoke to/with the Adventure Program teens and was able to hear Kalee share more of her life and dreams with the group as well. She is eloquent, loving and determined to survive and spread the word to others. Fear and shame are nowhere to be found in Kalee's vocabulary. In fact, after a recent phone conversation with Kalee, I hear she too will be sky diving soon, again, NO FEAR! She also continues to do her part educating and advocating on behalf of HIV/AIDS while sharing her inspiring story. I couldn't be more proud to call Kalee my friend and wish her another 100 years of continued health and happiness. Thank you Kalee for blessing my life and that of many others. I look forward to working more with Kalee, both at Camp and through various other outreach and education. We are all blessed to know Kalee and now you are too! Fight on girl!

 

Kalee Garland, EG Daily and Da Pirate-Bob Bowers

 

One Tough Pirate Da Pirate www.onetoughpirate.com Bob Bowers

 
My name is Kalee Garland. I was born positive on May 13 1986; my status was not discovered until I was seven years old. My elementary school called CPS (Child Protective Services) on my mom. The school thought my mom was beating me because of the multiply bruises on my legs and arms. My mom was not beating me. I was forced to go to the doctors. The doctors initially thought that IKalee Garland-Long term HIV/AIDS Survivor-www.onetoughpirate.com had leukemia. After a marrow test, the doctors discovered that I had ITP (Idiopathic Thrombocytopenic Purpura). After comprehensive tests, my doctors discovered I was HIV positive. My whole family was tested. My two older brothers both tested negative (thank god). My father was also negative, but my mom was positive. She contracted the virus when she was between the age of 17 and 19 from her first real boyfriend, Bill. Bill had a blood transfusion and used IV drugs. My mom tracked down Bill in 1994. He had passed a couple years earlier from AIDS related causes. My T-cells were seven. I had been diagnosed with AIDS. The doctors told my mom that I would most likely die in about six months. My mother put her health aside and focused on mine. She immediately enrolled me into a study at NIH (National Institute of Health). I was put on OTP dicea combination on DDI, AZT, and 3TC. The drugs that I was prescribed to take were toxic. When my study was over, I made the decision to stop taking meds. All I wanted was to be “normal.” “Normal” kids did not have to take disgusting tasting medicines, or worry about getting sick. I did not disclose my status to anyone, not even my school. I lived in fear all throughout school of people prejudices. In the sixth grade I finally told my best friend Janet my secret. Her reaction was positive and it felt so good to be able to tell someone. My friend’s acceptance helped dispel my fear of people being scared to be close to me. Until two years ago, I never had any health problems due to my health status. During that span of time, I got cryptococcal meningitis four times. The last time was by far the worst. I lived in UCSD medical center for over a month and a half. My head was shaven to put a shunt into my skull to drain the fluid that was rapidly building up. My weight plummeted drastically to less than 90 pounds (I am 5’6) from vomiting and being on a diet of opiates and glucose. I broke out early and turned my family friends’ house into my rehabilitation center. My family and friends feared for my life, but I knew it was not my time. I decided as my New Year resolution to focus on my health. I had not taken medication for over ten years. My CD4 count has stayed in the single and double-digit numbers and my viral load as pretty much been in 20,000s all my life. I feel I am in a place in my life were I do not have to hide or be scared. I do not have to go to school five days a week for eight hours, and see the same people. All my friends know my status and are supportive. My viral load is now almost undetectable and my CD4 count is still lingering around 13, but I am not too worried about it, it will come up when it is ready.
 

Kalee knows how we Pirates do..... Fight on girl!

 
OTP-www.onetoughpirate.com “At such moments, you realize that you and the other are, in fact, one. It's a big realization. Survival is the second law of life. The first is that we are all one.”

~Joseph Campbell

 
YouTube's from Oregon Speaking Tour:

Bob and Kalee being interviewed for "Hot Topic" on KLOO Radio in Albany, Oregon
Includes a variety of photos...
     
Part One   Part Two
 
Part Three

Click for more YouTube videos from HIVictorious

 

AIDS activist-Bob Bowers-Madison, Wisconsin-Youth HIV/AIDS education in schools, colleges, jails and universities in Wisconsin and the United States

Click photo to learn more about AIDS Activist Bob Bowers

 
God bless you Bob - keep up the excellent work my friend!

~ Mae
 
I still remember you coming in 2 years ago to my freshman health class and how you changed my view of HIV/AIDS.

~Amanda
 
AIDS activist Bob Bowers and Youth HIV/AIDS education-OTP social networking sites-Madison, Wisconsin-United States

Madison, Wisconsin AIDS Activist, youth HIV/AIDS educator and long-term survivor-Bob Bowers Facebook profile

  Madison, Wisconsin and United States AIDS activists & Youth HIV/AIDS educators-Bob Bowers One Tough Pirate's MySpace profile   AIDS activist - Follow Bob Bowers on Twitter   living with hiv/aids - Bob Bowers YouTube page
 

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HIV testing sites and STDs in Madison, Wisconsin and the United States
HIV testing sites in Madison, Wisconsin and United States

 

 

 

Above photos taken during our 2007 Oregon speaking tour. See news below.

 

 

Student, born with HIV, gives talk

By THERESA HOGUE
Gazette-Times reporter
Kalee Garland AIDS survivor

When Kalee Garland was 7 years old, her teacher called Child Protective Services because she saw Garland covered in bruises and feared the worst.

But the worst was not exactly what her teacher had expected. Garland was not being hurt by her mother. She was battling AIDS.

The diagnosis was unexpected to everyone, especially Garland’s mother, who until that moment hadn’t realized that she had been infected with HIV by a boyfriend long before Garland was born.

Garland was born with the virus, and by age 7 she had full-blown AIDS — and a very bleak prognosis. Doctors didn’t expect her to live longer than six months.

But now, at age 21, Garland is a university student in San Diego with a fiancé and exciting plans for her future. For the past week, she’s been traveling around Oregon with her friend, Bob Bowers of HIVictorious, talking about her life with AIDS to school kids, community groups and whoever else will listen.

Bowers is the nephew of Corvallis resident David Williams. The Corvallis Elks, of which Williams is a member, has hosted Bowers and Garland’s appearances. They will speak at area high schools, Community Outreach Inc. and other locations, including a keynote address at Linn Benton Community College. It is scheduled for Thursday as part of International World AIDS Day.

Garland first met Bowers when she was attending Camp Heartland, a camp for children and teens affected by HIV.

“I saw Bob and totally connected with him ... He had tattoos, and he reminded me of Henry Rollins,” she said, referring to the famed — and heavily inked — author and former lead singer of the punk group Black Flag.

When Bowers started talking about his own experiences as an HIV-positive adult, he also shared his mission through HIVictorious, which is to educate and demystify the world of AIDS/HIV. He asked Garland if she might be interested in traveling to Oregon in the fall to help him share that message.

“I jumped at the chance,” Garland said. She’s already done multiple presentations on AIDS through the University of California at San Diego, and feels it’s important to help people understand the truth about HIV.

“People with HIV and AIDS are just human,” she said. “We’re not running around infecting people. You have to engage in a behavior that’s high risk to contract it.”

Garland survived her early years with AIDS by taking a combination of highly toxic AIDS medications, but by the age of 10, she began refusing treatment because the side effects were too great. For a time, she participated in an experimental treatment where she was infused with a donor’s white blood cells, but the experiment was discontinued, so throughout her teen years, Garland went untreated.

That turned out to be a mistake. Garland contracted meningitis four times between the ages of 16 and 18, and the final time, it was so severe that doctors had to implant a shunt through her head that drained into her stomach. She decided it was time to get back on her medications.

Today, her viral load is now undetectable, and her T-cell count is at 80, where it used to be in the teens. T-cells are a kind of white blood cell that help fight off illness. A healthy human usually has a count of 600 to 1,200.

She doesn’t know what the future holds, but says any prognosis she receives will be taken with a dash of skepticism. After all, doctors didn’t expect her to survive past age 8 anyway.

And while she wants to make sure other young people know that people with AIDS and HIV shouldn’t be feared, she wants to impress upon them that the disease itself is nothing to take casually.

“You’re not invincible,” she said.

*************

Albany Democrat Herald Logo
Local/State
World Aids Day focuses on what you can do to combat the disease
Kalee Garland and Bob Bowers doing HIV/AIDS education/prevention at Linn Benton Community College LBCC in Albany Oregon-HIVictorious-Madison, Wisconsin-United States
Alex Paul/Democrat-Herald
Kalee Garland, who has was born with HIV/AIDS, and Bob Bowers, who has lived with the disease for 23 years, spoke Thursday at Linn-Benton Community College during World Aids Day.

At first glance, dressed in black, with tattoos running up and down both arms, and a skull-like silver belt buckle, Bob Bowers is an imposing figure.

That is until he starts to to talk about living with HIV/AIDS for 23 years. Tears start flowing and the tough guy persona melts away.

The tears, he says, aren’t about his life. They are for the millions of people around the world who have died from the disease or its complications. Many of them were his friends.

Thursday, Bowers and Kalee Garland, 21, who was born with HIV which turned into “full blown AIDS” when she was just 7 years old, spoke at Linn-Benton Community College during World AIDS day. Their visit was sponsored by the college’s Student Life and Leadership office.

“We have lost 25 million brothers and sisters so far,” Bowers said. “Yet, this is a preventable disease.”

An Oregon native, Bowers said AIDS is an extension of social issues including extreme poverty, racism, and physical and mental abuse. Bowers lost his mother when he was 10 and never knew a real father figure. He went looking for love and often in the wrong places. At 19, he was living a fast life of drugs and unprotected sex in Los Angeles.

At 21, he was diagnosed with what was then called Gay Related Immune Deficiency. He said AIDS no longer garners front page headlines because people believe there are “drug cocktails” that have defeated the disease.

“Those cocktails are actually chemotherapeutic medications,” Bowers said. “They are powerful, they make you sick. It isn’t pleasant and they cost thousands of dollars per month.” They also don’t work for everyone with AIDS.

Bowers said HIV/AIDs does not discriminate by social class. It is not a homosexual disease.

“It’s not who you are, it’s what you do,” Bowers said. “If you want to shoot dope, don’t share needles. If you want to have sex, use a condom.”

Garland is a San Diego, Calif. native who learned about her disease after a teacher thought she had been abused at home. Bruises were outward signs of her disease.

“I love my life. I was supposed to die at age 7,” Garland said. “I am not a survivor; I am a fighter.”

Garland has endured the inability to fight off infections caused by the disease, including battling meningitis four times and having 68 spinal taps during her many stays in hospitals. She has also suffered from the ignorance of others, including teachers, when it comes to HIV/AIDS.

Garland is engaged to be married and says her fiance does not have HIV/AIDS. Bowers was married for 11 years and his wife did not have HIV/AIDS, nor does she now. He has been in a 3-year relationship with a woman who does not have HIV/AIDS.

Protection, Bowers and Garland agree, is mandatory, not just because of AIDS, but also to protect yourself from more than two dozen sexually transmitted diseases. The two encouraged the audience to be involved by becoming educated, getting tested, volunteering with programs such as the Valley Aids Information Network and supporting legislation to find a cure for the disease.

To learn more about AIDS/HIV, visit Bowers’ website, www.hivictorious.org

Locally, visit the Valley Aids Information Network at www.valleyaidsinfo.org or call the Linn County Health Department

By Alex Paul, Albany Democrat-Herald.

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kalee garland bob bowers camp heartland

Once a Pirate, always a Pirate!
Re-united at last!-Camp Heartland, 2006

kalee garland camp heartland lake noodle

Kalee and me were canoe skill leaders

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Kalee and Da Pirate-2006
Arrrrrrrrrrrrr baby!

 

kalee garland mtv bob bowers
Da Pirate filming Kalee for the MTV Special
"Think HIV--This is Me"

I couldn't be prouder to Kalee was featured in length on the recent  MTV special "Think HIV-This is Me." The show was amazing and if you missed it, you can click here to view it online. Just click "Channels" then "News" and then scroll down to the title of the show. I'd like to extend a special thanks to David Gale, Executive-Vice President of MTV Films for being so gracious with Kalee, me and others at camp!
Thank you
is not nearly enough.

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red ribbon tattoos for AIDS awareness-kalee garland
AIDS awareness red ribbon tattoo
Kalee's latest tattoo addition!

 

AIDS documentaries-HIV/AIDS documentary films-movies-The Fire Within featuring long-term HIV/AIDS survivor Bob Bowers

 
 
HIV positive speaker and AIDS activist Bob Bowers, One Tough Pirate, also known simply as "Da Pirate," has been living with and surviving HIV/AIDS for 25 years. Bob started as a youth HIV/AIDS educator  with peer education programs in Los Angeles shortly after his diagnosis. To broaden his personal message of prevention through education, hope and awareness of the disease, Bob founded the nonprofit HIV/AIDS educational organization, HIVictorious, Inc. in 2005. HIVictorious addresses youth HIV/AIDS education and prevention and provides AIDS awareness in Madison, Wisconsin and throughout the United States through Bob's public speaking and it's AIDS awareness poster contest, "What if it Were You?" Mr. Bowers long-term survivor of HIV/AIDS, and someone who has lost dozen of friends to AIDS, Bob is wholeheartedly committed to educating today's youth and young adults, about the realities of HIV/AIDS as well as living with AIDS long-term. Mr. Bowers is a champion for hope and survival despite some of the difficult circumstances that we ALL face in life.
 
 

 "Compassion is our cure." ~Bob Bowers

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Speakers doing HIV/AIDS education, prevention in jails, prisons, correctional facilities-AIDS activists, long-term survivors and youth HIV/AIDS education-Bob Bowers-Madison, Wisconsin-United States